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Wednesday
13Jan2010

and some of us are neurotic, but still nice and totally worth knowing

 I can be a bit of a hypochondriac. Not like one of those people who’s ailing every day, but one who’s preoccupied with her own certain, looming-just-around-the-corner diagnosis of an awful, drawn out fatal disease which will surely involve leaving the earth looking ugly. There. I said it. I don’t want to die ugly. I’m a vain hypochondriac.

For years I was convinced that breast cancer wasn’t an if, but a when for me. My paternal grandmother died of breast cancer in her 50s. My maternal grandmother died of it in her 60s. I considered spending lots of money to find out if I carry the breast cancer gene — because people like me can really benefit from knowing that they don’t currently have breast cancer, but they have the gene, which just means if they live long enough they’ll get it. Such testing allows us plenty of time to pick out our wig and make it clear that we don’t want anyone to put that awful pancake makeup on our faces for the viewing.

But then one day my little voice said, “Girlfriend, you've got A-cups on a fluffy day with poor lighting. You are so gonna notice if you sprout a lump.” It’ll be like that puberty I kept waiting for.

So I get mammograms and do self-exams and so far, no lumps. Plus, I have a non-blood-related grandma and an aunt in my family who’ve had breast cancer and kicked it’s wonky-celled butt. So there.

But then I moved on to my hearing. I don’t hear well, so I saw a specialist and had tests to determine if I was going deaf or if there was some flesh-eating virus in my brain. Turns out I’m just deaf enough to warrant a hearing aid, but I’m not ready for that, so I just say WHAT?! a lot.

The hearing tests revealed a positive ANA titer, which means I’m autoimmune. When I asked the doctor what that means he said, “It might mean that your own body attacked your hearing. Or maybe not. We don’t know.”

 Splendid.

I didn’t know much about autoimmune disorders, so I did some Googling and bought a book on it for cozy bedtime reading. Autoimmune disorders include nightmares like multiple sclerosis, lupus, Guillan-Barre syndrome and many more. There are also many symptoms that go along with autoimmunity such as dry skin (Yes), allergies (Yes), poor circulation in hands and feet (Yes. Hello nasty, yellow old-person-looking toenails and feet. I know you’re in my future.) and alopecia.

Wait, what’s that? Alopecia? Alopecia is LOSING YOUR HAIR. Dear God! Do you have any idea how many times I’ve checked my scalp for patchiness after reading that? Or how many women I’ve studied in the checkout line to see which sorry specimens are also probably losing their hair? Then I worried that all that worrying was going to make me lose my hair BECAUSE I’M SUCH A COMPLETE LOSER, as autoimmune responses are often triggered by stress. Deaf and bald at 41, with who knows what else waiting to ruin my life?
 
Because I have a bit of self-awareness, I keep my neuroses mostly to myself. I do tell Shawn about them though, and over the years he’s patiently weathered several near deaths and many potential threats to my looks. Still, this self-awareness wasn’t enough to keep me from beefing up my medical savings account this year for the inevitable. And it wasn’t enough to keep me from writing to a nurse-friend who writes a health column for one of the publications I manage at work.

I asked her about being autoimmune, and whether or not I should go see a naturopath or a rheumatologist to find out what’s wrong with me, even though nothing is really wrong (right now). She kindly took the time to write me a long, thoughtful email that could have been boiled down to this:

Dear Megan,
Settle the heck down. You’re healthy and nothing is wrong with you. No need for doctors or testing when: NOTHING IS WRONG. Enjoy your good health.
Warmly,
R

Getting her letter was like when a two-year-old has a tantrum and suddenly pauses to take a deep breath. It was pure relief. I was like, Oh, I’m healthy. I guess I can just chill out and enjoy it. No need for tests.

Why didn’t I think of that?

 






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Reader Comments (8)

Very nice LOL Rob grounds me from WebMD all the time. Whenever something is wrong with someone in our family it's the big running joke about how long it'll take for heidi to google it. *sigh* I just like to be prepared for the worst case scenario, ya know? Then when it ISN'T a fatal flesh eating disease, I'm completely thrilled, relieved and counting my blessings. See? I have a plan.

January 13, 2010 | Unregistered Commenterheidi

You know, it's people like your nurse friend who are going to bring down the medical pharmeceutical industrial complex. Good thing you protected her identity. Better to keep worrying and keep the economy rolling!

Seriously, I can't wait until they find out why so many women have autoimmune issues, myself included. I have a feeling there's going to be a huge ah-hah in the next decade or so.

January 13, 2010 | Unregistered CommenterCherilyn

I'm about ready to blame my inability to lose baby weight on a thyroid disorder. If moderate exercise and decent eating are kicking the fat, it must be a thyroid, right? Not the fact that I am creeping up on 40....

January 13, 2010 | Unregistered CommenterMelynda

Well all I can say is when you hit forty all hell breaks loose with our bodies. Everything starts to go. You get lines around your eyes and mouth, your circulation gets a little worse ,you need bifocels , you start losing your hair your (small ) boobs sag a little You can see all your gray hairs , and you get think your going to die young and ugly , and then your older husband laughs at you and you settle the heck down, Because gray hair and wrinkles ect didnt kill him yet did it. I so hate it when they are right lol

January 13, 2010 | Unregistered CommenterSDA

Heidi: Makes complete sense to me!

Cherilyn: Maybe we could be "autoimmune buddies." You know, have coffee and compare symptoms?...

Melynda: It's totally thyroid. You better have that checked out! : )

SDA: Yeah, you have that luxury of having an older husband: Old is wherever HE is in life. I, on the other hand, do not have that luxury since Shawn is a year younger than me. The upside is I get to slumber *ahem* with a younger man every night. Downside is I'm paving the way into old age for us!

January 13, 2010 | Registered CommenterMegan Ault Regnerus

Megan: PLEASE don't visit the ER with any of your autoimmune stuff. We don't know about that stuff, that is we learned about it in Med School, but promptly forgot it in residency. Largely an ADHD specialty, ER docs lack the patience to work up someone with a disorder that they've had longer than, say, a week. Just a little insight.
Also - I just listened to your radio interview. Good job.

January 13, 2010 | Unregistered CommenterMary

Hello, my name is Tracey and I am an OverAnxious Worst Case Scenario Death Is IMMINENT headcase.
Nice to meet you.

We're flying to New Orleans the end of this month for a cruise and I've already imagined the plane crashing in every conceivable way possible. Not to mention the incredibly dangerous things that can happen while cruising the Caribbean. You know, PIRATES.

January 14, 2010 | Unregistered CommenterCatootes

Hey Mary: Thanks and thanks! Unfortunately, we just had an ER incident last night, as my mother-in-law broke her leg after slipping on ice while out for a walk. I'm always in awe of medical staff in ERs...You've got to feel good about the work you do!

Tracey: Oh, that cruise will be so good for what ails you : ) I'm not a huge fan of flying either. As Barefoot Foodie says: "I am a firm believer that flying in airplanes goes against nature (Hello!? Only Jesus is allowed to float and eat peanuts in the sky)..."

January 14, 2010 | Registered CommenterMegan Ault Regnerus

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